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RLS or PLMB?

Sleep Health | Last Active: 4 hours ago | Replies (10)

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Profile picture for vikkitennis @vikkitennis

Good morning,
Do you experience a leg twitching or "jumping" every few seconds, up to 15 seconds? If so, that is PLMD. I was told not so much diagnosed, with RLS over 35 years ago by my GP. I began the series of medications to relieve symptoms associated with it, but I knew something wasn't clear, as augmentation would set in with no matter what prescription I was prescribed. Finally, a Mayo Sleep Specialist and Neurologist diagnosed me with PLMD about 2-3 years ago, and I profusely thanked her and knew she was listening to me, and to my symptoms. I take an opiate called buprenorphine, a small dose, .66 mg from a 2 mg tablet. It has made all the difference in the world, as I now can restfully sleep up to 3 hours without waking up, and when waking up to use the bathroom, or with dry mouth ( a side effect besides constipation) I return to sleep.
I would find another neurologist.
Also, get off the pramaipexole: that drug is wicked! So wicked is once you taper off and stop this drug, the PLMD or RLS returns with a vengeance, and makes your body in a worse state, tackling more episodes than before.

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Replies to "Good morning, Do you experience a leg twitching or "jumping" every few seconds, up to 15..."

@vikkitennis
I have had lifelong insomnia and was diagnosed with PLMD a few years ago with 120 twitches an hour. I was prescribed gaberpentin, but didn't want to take it due to side effects.
I am now sleeping more than 7 hours a night for the last 7 months with a fairly new drug called Quviviq. I take 50mg a night as the research shows it to be more effective than the 25mg....I continue to wake once or twice a night but I am now able to get back to sleep. Magic!!!
The only downside is that ir costs me €100 a month ( I live in Ireland) and this is not covered by insurance. I need to ensure that I will be in bed for 8 hours as it has a half life of 8 hours, but I just don't take it if I can't guarantee that. I then revert to sleeping patterns similar to, but not as bad as, my previous insomnia. It's not addictive snd doesn't build up a tolerance.

@vikkitennis I don't have insomnia I have Hypersomnia which is the opposite. I sleep at night but I think the PLMD interups my sleep. Also when I wake up my legs, knees, hips, and lower back hurt and I still feel tired. Unfortunately the "experts" don't think this is probable and after trying anew men's they say I got nothing for you.