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Does anyone have Superior Canal Dehiscence Syndrome and fine it severe

Ear, Nose & Throat (ENT) | Last Active: 1 day ago | Replies (7)
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Profile picture for arbez @arbez

I actually have this and am in the middle of diagnosis and treatment. I'd suggest ENT (they can order scans). But your dentist may be able to detect issues with upper back teeth and refer you to endodontist. Sometimes you need CBCT scan to detect issues and they are only done by endodontists and some oral surgeons. My CT scans & MRI missed an abscessed tooth that had eaten bone and caused sinus tract to roof of my mouth. I believe that it is the root of all my problems. My abscessed tooth never hurt.

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Replies to "I actually have this and am in the middle of diagnosis and treatment. I'd suggest ENT..."
jimiwho | @jimiwho | 1 day ago

So much info and help from you!! Thank you! I hope you are feeling well
and doing better. Seems an enormous quest! I knew none of this!
The MRI I was told “okay” as was a painful US of my left temple. Pain I
thought was a symptom of something but I am now discarded. Exhausted,
sometimes confused, and so overwhelmed by pain, hearing loss/issues and 79
in a few days.

My left eye hurts and swells. Cataracts in both w central serous
retinopathy. I can see and see 20/25 and yelled at by ophthalmologist as
dr doesnt understand why! surgeons have told me will do surgery without
any meds. Next one gave me two epipens and eyedrops my pharmacist told me
not to take as could kill me! Need surgery someway.

Stomach/nutrition issues. No longer PCP….How do you manage what you do?
You are courageous and helpful. If Mayo will take me and if I can go that
route alone again. ..I awoke in chest pain and bp was high n breathing off.

Geriatric patient so fear infections as reactive to most meds. Where would
you start…how did you do so much? Forgive my only now responding. I must
write this down and find help if can do it! Wish you health and thank
you! Strongest appreciation of you!😌👍

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