Hurry up and wait

Posted by Russell @nrfuls66, 5 days ago

Prostate cancer is a lot of hurry up and wait. My Journey Started in April of this year with a rising PSA level. May brought on an MRI and Pirads 4 lesion. June was biopsy with 3 cores out of 15 positive for cancer and a Gleason score of 8. July was PSMA Pet scan. August 24th results from the pet scan and decipher score. Pet scan was clear with containment. The decipher score was .47, and Sept 10th finally get to see the oncologist for a consultation, with a follow up with my urologist to prescribe orgovyx for two years. I'm hoping to have five SRBT treatments with a possible Brachy boost.

It's like filling out 20 pages of digital check-in paper work on your phone the night before, only to be handed a clipboard with the same paper forms when you walk in. UGH!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

stage4lovolmetpc | @stage4lovolmetpc | 5 days ago

Well you hit that nail on the head! An appt every month since Aug of 25...finally...in July the MO said: see you in two months....then I had to see the dermatologist this month for skin cancer....lol......never took a pill in my life now I take 10 tablets everyday. Next: Pluvicto! Cant wait for that to happen...not!

Jeff Marchi | @jeffmarc | 5 days ago

It does take some time to get test results but prostate cancer is usually very slow growing.

Sounds like you picked a good treatment plan. You are very likely to never need to come back to this forum.

oldmariner | @oldmariner | 5 days ago

I concur with the earlier posts.
Yes, it takes time, but with all the available resources these days, it's good to get as much information as possible to arrive at the best approach for YOUR case.