@keggebraaten thank you for taking the matter to the leadership. The stress I have been through was
huge between being “ rejected” from my strongest supporter “Mayo Speciality pharmacy “ to be “pushed around” by my insurance customer service. Mistakes left and right by customer service, first saying CVS Speciality is in network, finished paper work, then they were declined by insurance because they are out of network. Then went back to insurance just to get correct information and went through a nightmare as the answer depended on who picked up my call. Shouting or naive answers to go to the neighbourhood Walmart local pharmacy !!
And here I am every day calling another speciality pharmacy or drive my car and talking to every local pharmacy nearby.
Wondering is this real or a nightmare to wake up from! Then I went to the local Walgreen pharmacy and found that angel “pharmacist” she was on full board with me as if my problem was hers. She asuured me to get these meds by ordering every month “Envarsus XR “from the manufacturer ahead of time as they don’t have it in stock and using FedEx to get them to the pharmacy and I pick up there. I trusted her sincerity. I realized I have a risk no mater what and trusted her as my minimum risk.
They got me Envarsus for this month on time.
So my stress level went down.

I called the desk of the transplant center at Mayo and to complete the stress cycle, the woman who picked up the phone was rude saying things like her job is scheduling or call us in a week if the problem was not solved, I said i called the only number I have when I face serious problem like this but her attitude was bad! I actually drafted a complaint against her but I decided to focus more on how to get the meds.
I am sure all that stress has affected my new kidney! as later appeared in my monthly blood test.
Thank you
Magda