← Return to Feeling tired all the time- One month on higher dose of Camzyos

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Profile picture for Linda, Volunteer Mentor @walkinggirl

@reeha37 I am sorry to read that Camzyos is giving you side effects. I found that you posted a little over a week ago that you had burning in your mouth, has that been resolved?

I learned from reading discussion posts about Camzyos that three things can happen. It's a miracle drug and life returns mostly to normal. It does nothing or has too many side effects that compromise the quality of life. Lastly, it works well and then doesn't work.

I was never prescribed Camzyos, I hope that those who experienced fatigued will share their experiences, especially if the fatigue ceased and how long that took. Everyone is different, so each person would have their own tale to tell.

Have you discussed this with your doctor?

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Replies to "@reeha37 I am sorry to read that Camzyos is giving you side effects. I found that..."

@walkinggirl
Yes I have talked to my doctor and I am taking it for 12 weeks the 5 mg then have echo see how it’s going if it improving things iv been on 2.5 for 4 months also have blocked aortic valve but I cannot have any operations so see how we go x

@walkinggirl
Also sorry no I still have the burning tongue headaches tiredness but give it a go as I cannot be operated on x