Hi @rustyjones
Thank you for sharing this!
@dannoyes made a point that really resonates with what you're describing: that the seizures themselves are almost the minor part of living with epilepsy, and the harder part is everything it changes around us — how people treat us, how much independence we lose, how relationships shift. Your post is such a clear example of exactly that.
Like Dan, and like many of us here, I also depend on others to drive. When I was diagnosed in 2019, it was extremely difficult to accept — I stayed anchored in that sense of loss for a good time, fighting to keep doing things the old way. It was really with the help of my neuropsychologist that I was finally able to accept my epilepsy and its limitations, and start reinventing how I approach my life to keep going.
There's a discussion in our group that might be helpful to you at this moment, if you'd like to take a look:
"Any phrase, idea that helped you navigate life with epilepsy?"
https://connect.mayoclinic.org/discussion/any-phrase-idea-that-helped-you-navigate-life-with-epilepsy/
Has anyone in your life been a source of real support through all of this, or does it feel like you're mostly facing it alone?
Sending you much strength!
Chris