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@jlharsh
Hi Janell,
My bad on the appt which was last Friday but it was with the PA. Honestly, she was talking but I wasn't hearing. Like I was in shock and didn't know what to say. I think I went straight to denial. But I certainly have a story to tell so far and I need direction. So much has been thrown at me, I'm very overwhelmed. After finding out about the A fib, they put me on two meds , as I said, Eliquis and Metoprolol. I seem to be doing ok and I take the Metoprolol at night. I had a Cat Scan with contrast on Aug 12th. I have the report in my hand.
Impression: 1. No aneurysmal dilation of the abdominal aorta. No high-grade stenosis. 2. 73 x 67 mm abdominal wall diaphragmatic defect and hiatal hernia. I knew I had a "small" , at the time, hiatal hernia approx. 5 years ago. Was never told that it was a diaphragmatic situation. I'm shocked at how big it is and am I going to have to have surgery better than later to get this repaired.
I still have the ascending aortic aneurysm but they didn't mention it on this CT scan results. I was most certainly told by another BIG well known hospital that I had an descending aortic aneurysm. Question, did they refer the diaphragmatic defect and hiatal hernia an aneurysm? The reason I have two Cardiac doctors is because i started going to this particular doctor who is in my home town vs. driving 2 hours in traffic to the well known place. They actually contacted me and said that they would handle everything. In the meantime I have the other doctor close by that I had an appt with. I told him I had a descending aortic aneurysm. He looked at me kind of puzzled and ordered the Cat Scan AND casually questioned me if I was having any palpitations, pvc or A fib. I had a little and he asked me if I felt it monthly or weekly. I told him, weekly. Right away he ordered the 7 day heart monitor. On day 2 , my heart pounded so bad I couldn't count it. It set me back and I was really scared. I didn't call 911 , I just layed down and drank water. I thought I was dehydrated. Now that I have this very large diaphragmatic defect that could be possibly pushing into my chest and putting pressure on the heart? I know I googled it, and it said if it is pushing up into my chest that it could cause A fib. Now, I'm wondering what is causing the A Fib. Am I taking the metoprolol and Eliquis for a reason? I need to go over all this with the Cardiologist and ask questions. I also have an appt Thursday to see my primary and get her input. Here's another question, I have lost 75lbs in the last 5 years. I then found out I was diabetic even after losing the weight. Then the dr asked me if I'd like to try Ozempic to control my diabetes. And I'm almost to a normal weight. I'm almost the weight I was when I got married in 1979. I'm so glad that I'm not dealing with a larger frame or I 'd really be in trouble with all the surgeries I've had that would never have taken place. The a1c is down and that's a big deal. Now I'm on 2 new meds and the Metoprolol and a Eliquis a blood thinner. I'm afraid I will throw a clot and have a stroke. I've got sleep apnea too and the diabetes. Comorbidity at it's best. Now it's A fib.
I'm not feeling sorry for myself, I'm a very positive person. It's just knocked me down like rock. Overwhelmed is the only word I can think of. I truly value the people on these boards who talk about the same situation I'm in and how to handle it. Did I mention that I have a hiatal hernia along with the diaphragmatic defect. So there's a lot going on in the stomach area. I've been taking prescription strength Omeprazole and it's working, somewhat. What do I deal with first? Thank you for all your support.
Jan A. Fallbrook , CA

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Replies to "@jlharsh Hi Janell, My bad on the appt which was last Friday but it was with..."

@janagain Jan, I can understand why “overwhelmed” is the word that keeps coming to mind. You have several new findings and reports that don’t seem to line up neatly.

If it were me, I would find the report or visit summary where you were told about the descending aortic aneurysm and take it, along with this CT report, to your primary care appointment Thursday. You have good instincts. I think your own question is a good place to start: “What do I deal with first?” You might also ask which doctor should be managing each issue and how the pieces fit together.

Others may have helpful ideas too. When several conditions and specialists are involved, what has helped you keep track of who is managing what and what needs attention first?