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My sister transitioned away from home at 50 yo. My parents never wanted her “labeled” with a disability, so she does not qualify for government support although she functions somewhat similar to Down Syndrome. So the group support she receives is different, all private pay. My mom had investigated available group living supports in FL, chose five, and we drove around FL to visit each, meet staff, view how it functioned.

A friend whose daughter has a child with a disability moved her daughter to a government support group home when she was about 20. This mom also loved the time with her daughter so when she started at the group home, I believe, she only stayed a couple of days a week for maybe 3-4 weeks. They added more days. She continued to spend weekends at home for quite a while. Now, about 7 years later, they still take her shopping or out to lunch. Visiting overnight at home is very infrequent. The young woman with a disability adjusted well to the group home, found a best friend, and does not object to staying in the group home. Of course, no later how few days she was at the group home, the cost was the same as if she were there 24/7 as the home needed to hold her room and have enough staff.

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Replies to "My sister transitioned away from home at 50 yo. My parents never wanted her “labeled” with..."

@triciaot Thank you for your reply, it’s nice to know that your friend’s daughter made a good adjustment, a few days at a time worked well for her. How is your sister doing ?
I am also in the process of seeing a lawyer to have our middle son who lives near us appointed a Co-guardian so that if something happened to my husband and I at the same time, he would not go through the court system to get guardianship. There’s a lot to think about when you get older. We already have a will with a Special Needs trust in place.