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Tymlos Side effects

Posted by lori62yb @lori62yb, Aug 6 9:57am

Hello! I started taking Tymlos injections 5 days ago and almost immediately got a headache across my forehead. It lasted a few hours and I did dose with Tylenol. The next morning, I began to have facial pain, like I was suffering from allergies. The bigger issue, is I’ve suffered from severe dry eye for 10 years. I use Restasis daily, and have had some dissolving plugs put in recently, to help with the dryness. Since starting Tymlos, my dry eye is out of control and unbearable. I’m unable to sleep, with the eye pain and the headache, that is also in my cheeekbones.
I’ve had osteoporosis since I was 45, and have done infusions over the years. At 64 my Rheumatologist wanted me to try a bone builder, but I can’t do this much longer. She had wanted me to take a different medication, but my insurance said I had to try Tymlos first.
Any help you can offer, will be much appreciated. I’m an active 64 year old, riding my Peloton bike and lifting weights, I just want to continue this lifestyle, without feeling awful on a medication.
Thank you, Lori

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barb3 | @barb3 | 5 hours ago
In reply to @gently "@willowmena we really don't have to worry about developing cancer like those rats. I also find..." + (show)
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@willowmena
we really don't have to worry about developing cancer like those rats.
I also find it a little suspect that the 40mcg results aren't published except in press releases.
But Radius did design a flexible pen, not accidentally, I suspect, because this pen design is more expensive to manufacture than a flat dose devise would be.
I've heard of Radius reps recommending titrated dosage and even explaining how to achieve them (only on Connect).
I often suspect that phone representatives in most companies are undertrained.
There could be a legal (FDA) problem in advising because the drug wasn't tested in the ways we want, need to use them.

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@gently
Yes, I called Radius this week as I'm hoping to go on Tymlos in January and asked about titrating up. The guy said they can only recommend what the FDA approved, which is the 80 mcg dose. I'm still planning to titrate up given my troubles tolerating teriparatide (which I've resumed taking every other day until I can change my Medicare Part D plan for next year). I don't know what I would do without all of you sharing your experience and expertise. Thank you.

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roseincalifornia | @roseincalifornia | 4 hours ago
In reply to @jsakamoto "@lori62yblori62yb Me too! count to 10 and done. Don't know about clicks. I'm 5'3 and 95..." + (show)
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@lori62yblori62yb
Me too! count to 10 and done. Don't know about clicks. I'm 5'3 and 95 lb.
Does that matter?

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@jsakamoto

Body weight and size does not matter for tymlos. I am 100lb and have no side effects.

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justme34 | @justme34 | 46 minutes ago
In reply to @loriesco "@justme34 yes you got it right I just went over and looked at my pen. When..." + (show)
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@justme34 yes you got it right I just went over and looked at my pen. When I started, I also had severe reactions, but then it went away. It sounds like you have not read the leaflet information or spoken with your doctor which I recommend both. I also recommend that you call the pharmaceutical company. They have a helpline if you have questions after reading the literature. It is important to try different times of day. I started out in the morning, but I got severely nauseous and dizzy and so I went to the evening after dinner. I’m not that active after dinner so I just kind of settled in. I always make space around trying new medicines and it sounds like you had the classic side effects. I’m sure it will get better!

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@loriesco Thank you!! I will call the pharmaceutical company.

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