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Anyone else on Daraxonrasib (RMC-6236)?

Pancreatic Cancer | Last Active: 1 day ago | Replies (131)

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Profile picture for valerina30 @valerina30

@mimimmx oh really ok thanks. Do the nasty side effects stay with you the whole time? Hoping to start this pill soon.

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Replies to "@mimimmx oh really ok thanks. Do the nasty side effects stay with you the whole time?..."

@valerina30

My side effects have shifted over time with the exception of one that I have had the whole time. I have a blister on my lower lip that started just weeks after going on the drugs and has stayed the entire time. Annoying. I have never had a severe facial rash. Just iccasional flare up’s that go away when treated. I initially had diahrea that was easily treated with Imodium. It has now gone away. I have had two bouts with anemia caused by low iron/ hemoglobin. Very fatigued during those times. Treated twice with iron infusions. I also had mouth sores for awhile that also stopped. Now my challenge is a rash on scalp. All of this annoying but ok to live with. Much easier than folfirinox for me. Overall my quality of life is very good.

@valerina30 I asked that question of my wife's NP. She said unfortunately, yes, although they may diminish. They can occur at any time during the duration of the treatment and will remain an issue.