← Return to Consistent/ Worsening Numbness and Other Symptoms

Discussion
sarah44 avatar

Consistent/ Worsening Numbness and Other Symptoms

Fibromyalgia | Last Active: Aug 23 9:26pm | Replies (6)

Comment receiving replies
Profile picture for leoandbear @leoandbear

Well, I think you are on the right course. Sometimes finding out what is wrong means you have to take tests and x-rays to know what it isn’t. Don’t dismiss your childhood trauma . Myself I never thought of it as trauma , because it was just my childhood and it seemed normal and all the people around me were my family. And when your whole family is like that, you just think it’s kind of normal. Sometimes with fibromyalgia, you never know what something is. It is not unusual to have numbness and tingling in your legs or arms. I also have tendinitis in my wrist and thumb. And if that kicks off, then my fibromyalgia really kicks it into a flare. So then that tension goes up my arm and across my shoulders. I think as we keep seeing through all our messages, we all have fibromyalgia, a crazy and different way and crazy and different drugs that only affect us. So it’s a lot of trying things. I had some water therapy that is called.WATSU. That was very helpful for a while. Cranial sacral is another thing that works well as it’s very gentle. The problem is all of these special services cost money. So you usually have to figure out what can afford and what works best. If you get your doctor to have PT we had water therapy here in Oregon and so I took that and it was paid for. Also, it depends upon your doctor. I had a good one for seven years and then she moved on. The one I have now is OK and she looks after my general health. But she doesn’t try to dig down on some of the problems I have. So I usually have to dig down myself on the Internet and then propose it to her. She usually goes along with it. We have to remember there is a very small population that has fibromyalgia, so not a lot of people know about it. That’s includes the doctors. There is a different kind of doctor called a physiatrist. They are doctors that look at the whole body and try to look at the whole system, including mental health and how it affects a person. I found her to be very helpful. Anyway, I went on with a lot of information, but I think you’re doing the right thing by drilling down on what it is not. So hang in there and keep working on it. I go to Internet newsletter is fibromyalgia syndrome association network. Try them out.

Jump to this post


Replies to "Well, I think you are on the right course. Sometimes finding out what is wrong means..."

@leoandbear Years ago, I did PT and did some therapy in warm water, and that felt really nice. I'll look into cranial sacral, as I haven't heard of that before. It can be difficult to find doctors that you like and will explore different issues you have. I'll do some research on psychiatrists too. Thank you so much for your suggestions and kind words!