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Might it be temporary sadness? How to make him feel better?
Caregivers: Mild Cognitive Impairment (MCI) & Dementia | Last Active: Aug 28 1:10pm | Replies (49)Comment receiving replies
@2me You know what, they amaze me in all of this. As I think they remember off and on more than we think. I was shocked when I started telling my husband about your husband and he wanted to participate like he was completely of sound mind and was educating me. That goes to show us, there's a light and spark in their brain, even though they don't remember the things they used to. We just never give up. Ps, when my husband went in the first few times, I remember telling the infusion people to help him, and get him to socialize if they could, to "start" the flow of good conversation with others. And I will tell you after the 18th or so infusion, I drop him off and pick him up; I don't sit in the infusion outside room any longer, he's that comfortable now. PPS, even if your husband doesn't remember sitting in the infusion room, if and when there are others, they'll talk, which will get him to talk. Someone in that room, three weeks ago, gave my husband their card and said we should do dinner sometimes. Funny. Again, we think they don't know. They know.......more than we think! I'm always telling my husband now, I'm amazed on the things he does remember. So the lequembe must be working. Hope, faith, and love.......and God's light in all of this.
Best, Karla
Replies to "@2me You know what, they amaze me in all of this. As I think they remember..."
I@kjc48 Hi Karla, thanks for this nice note!! That is so very cool, that you had a good discussion with your husband! And if I remember correctly, you are in Florida, so the card with contact info is “a thing” down there, and how nice of that person!. (We wintered in FL for several years)
As I think I mentioned, I visit the hospital and infusion room with my therapy dog (whose name is perfect (Magic)) so the nurses are used to seeing me around (tho sometimes I’m not recognized without the dog)😊I will take your suggestion and ask if they could facilitate conversation. I wish this was a room dedicated to Leqembi/Kisunla infusions, so there would be more of a chance of common ground, but people are in there for various other reasons, like Iron infusions etc.
Leqembi is giving us all hope! (And meanwhile, as I tell my husband, scientists are at work to find the next new thing to help!). Best wishes.
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@2me I wanted to add something.....what I'm trying to do through all of this - at least for now, is "normalize" it - for both of us - as much as I can. For example, when Guide (the infusion staff calls us, a few days after his infusion to make sure things are going well, they call my number. I talk to the nurse. And then I always put him on the phone to talk with her, so he can tell her himself how he feels. I see him light up over having conversation about "his condition" and wanting to tell her things, even if he doesn't remember her name. He remembers those infusions and how he feels. He even told her I'm his care partner. That's what I mean, by I think they know more than we think....at times...Best, Karla