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CANVAS Syndrome - Anyone else have this?
Neuropathy | Last Active: 9 hours ago | Replies (3)Comment receiving replies
@johnbishop hello! I’m from Brazil, and I was evaluated at the Mayo Clinic in Rochester. My diagnosis is leaning more toward CANVAS syndrome, and I’m currently waiting for the genetic test results. My test for Stiff Person Syndrome was negative. I’m an ophthalmologist specializing in retina, so if anyone has any questions about ophthalmology or retinal conditions, please feel free to ask.
Replies to "@johnbishop hello! I’m from Brazil, and I was evaluated at the Mayo Clinic in Rochester. My..."
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Hello @peca, I'm also a Rochester Mayo Clinic patient. You will notice that we changed the title of your discussion so that others with experience can find it easier and hopefully share their experience. If you haven't already seen this, the National Ataxia Foundation has quite a bit of information on the condition along with some webinars that might be helpful while you wait for members to respond.
-- Cerebellar Ataxia with Neuropathy and Vestibular Areflexia Syndrome (CANVAS)
https://www.ataxia.org/canvas/