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CANVAS Syndrome - Anyone else have this?

Neuropathy | Last Active: 9 hours ago | Replies (3)

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Welcome @peca, I don't have sensory neuropathy but do have small fiber peripheral neuropathy. I haven't seen any other members with sensory neuropathy who have posted about stiffness in the weight and trunk of the body but hopefully someone with experience can respond. From what I've read it sounds like you may be describing stiff-person syndrome. Mayo Clinic has some information here if you want to see if it's similar to what you are experiencing - https://newsnetwork.mayoclinic.org/discussion/what-is-stiff-person-syndrome/

Do you have other neuropathy symptoms as well as the stiffness?

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Replies to "Welcome @peca, I don't have sensory neuropathy but do have small fiber peripheral neuropathy. I haven't..."

@johnbishop hello! I’m from Brazil, and I was evaluated at the Mayo Clinic in Rochester. My diagnosis is leaning more toward CANVAS syndrome, and I’m currently waiting for the genetic test results. My test for Stiff Person Syndrome was negative. I’m an ophthalmologist specializing in retina, so if anyone has any questions about ophthalmology or retinal conditions, please feel free to ask.