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Hesitant on starting Hydrea for ET Jak 2

Blood Cancers & Disorders | Last Active: Aug 22 1:58pm | Replies (45)

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@conniemarie
Hi, I have been on HU for 9 years.
No side effects except for thinning hair...and slightly lower RBC & WBC.
When I started HU my platelets were in the 800s.
Anytime they creep back up to 400s in the past 9 years my hemotologist ups the dose.
Just recently she upped the dose to 1000 mgs 5days a week and 500 on the weekends which pushed the platelets back into the low 200s but for the 1st time it made me slightly anemic (I felt fine but the blood test showed the drop)...so we dropped it back 1 pill will see how it is going next month.
This is the dance you do with ET...tweaking the meds here and there to suppress the platelets .
Hope this helps.

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Replies to "@conniemarie Hi, I have been on HU for 9 years. No side effects except for thinning..."

@mjfp49
Thank you so much for your message - it does help.