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ADEM and Visual Snow

Brain & Nervous System | Last Active: Sep 30, 2017 | Replies (4)

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@colleenyoung

Hi @joyluc1330, please accept my late welcome to Connect.
I can't imagine what it must have been like for you and your son to be hospitalized for 8 months. Was his diagnosis of acute disseminated encephalomyelitis (ADEM) confirmed? How is your son doing now that he is at home? How are you?

You mentioned that one of your biggest concerns is the complications with his vision and ask about visual snow. I invite you to join this discussion on Connect, where you'll meet others like @ktshy @erikassf @danny59 @amyjo @carlie2 and @jglacken56, who are dealing with visual snow:
Visual Snow: Anyone experience this? https://connect.mayoclinic.org/discussion/visual-snow/

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Replies to "Hi @joyluc1330, please accept my late welcome to Connect. I can't imagine what it must have..."

Hi, Colleen!

Thanks for the welcome!

Yes, he's been classified as ADEM. He's actively searching for ways to better his visual from clinical trials to technologies. But so far, nothing seems to direct him to a possible cure.