So much uncertainty: How do you manage it?

Posted by anosmic1 @anosmic1, Jul 23 10:23am

The biggest challenge of this journey for me has been the uncertainty. What will the next test show? Did the surgery succeed? Did the radiation get the rest of it? When is it coming back?

This week I got another side of the uncertainty. As I mark 2 years since my diagnosis and feel good about my progress, I heard that an old high school friend was diagnosed this spring and has already passed. I don't know what kind of cancer he had. Same thing happened to another friend about 12 years ago.

I don't feel bad about surviving when the others have not, but it raises the question of uncertainty again. Why am I surviving Gleason 9 and they're gone in a moment?

We'll never know. All we can do is push on.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Personally, health uncertainties are experienced and addressed like other constant things in my life — I get used to them. I remember sitting in a chemo infusion room shortly after I was diagnosed with Non-Hodgkin’s Lymphoma and a woman was talking about having to deal with two cancers. I commented that I couldn’t possibly handle a second cancer; I’d fall apart. Well, fast forward 10 years and here I am talking to you all about my second cancer and I haven’t fallen apart (perhaps I don’t fall apart because I’ve never fallen together. IDK?).

Though trivial, another example, the time I came back from a ski trip with a terrible flu I didn’t want to deal with putting my skis up in the attic. I left them against a wall in the living room and the longer they were there the less visible they became. I wasn’t bothered by them. It wasn’t until A few months later that they finally found their proper storage place.

REPLY
Profile picture for camacho66 @camacho66

Hi Kevin, it looks like I am following your steps — had surgery at 56, I'm 59 now. Exact same pathology as yours, same Gleason; I will just need to add some cribriform and ductal pattern present. My post-RP pathology is much like yours, 10% of the prostate affected and clear on all fronts, no EPE, margins clear, nodes clear, pT2N0. Like you, I felt surgery was it, but two years later my PSA went up to 0.05, until the sh** moment came when I crossed 0.10. I went through SRT and 6 months of ADT, and just today I found out my SRT must have failed, since my PSA is at 0.12. Seeing your chart really helped me and encouraged me to just keep being in control and not let this sucker get out of hand and beat me. I see you patiently waited until you were able to see where the foci was and treat it. I am planning on doing the same. I am being treated at Mayo in Jacksonville. How did you create that graph? It's awesome — I think every PC patient should have one. Thanks a lot for uploading it; it really helped me a lot.

Jump to this post

@camacho66, I'm tagging @kujhawk1978 (Kevin) to make sure he sees your post about his graph and respond.

What are next steps for you?

REPLY
Profile picture for camacho66 @camacho66

Hi Kevin, it looks like I am following your steps — had surgery at 56, I'm 59 now. Exact same pathology as yours, same Gleason; I will just need to add some cribriform and ductal pattern present. My post-RP pathology is much like yours, 10% of the prostate affected and clear on all fronts, no EPE, margins clear, nodes clear, pT2N0. Like you, I felt surgery was it, but two years later my PSA went up to 0.05, until the sh** moment came when I crossed 0.10. I went through SRT and 6 months of ADT, and just today I found out my SRT must have failed, since my PSA is at 0.12. Seeing your chart really helped me and encouraged me to just keep being in control and not let this sucker get out of hand and beat me. I see you patiently waited until you were able to see where the foci was and treat it. I am planning on doing the same. I am being treated at Mayo in Jacksonville. How did you create that graph? It's awesome — I think every PC patient should have one. Thanks a lot for uploading it; it really helped me a lot.

Jump to this post

@camacho66

It's a MS Excel chart for the PSA.

I add text boxes with the major medical events.

It's useful when discussing one's medical history, especially with new members of the team.

Kevin

Kevin

REPLY
Please sign in or register to post a reply.