I empathize with your symptoms. I have been having similar symptoms that kinda took a while for anyone to take seriously honestly. I can't tell if its because I present my pain differently or if it's another external view of me but after 5 months of progressively severe on and off right eye pain, that accompanied right sided headaches that felt like something was squeezing and throbbing and on the verge of erupting, with the pain radiating to the whole side of my right face/head, sensitivity to lights when pain symptoms were on, peripheral or nearly out of view black floaters, and at times (at it's peak/worst) upper posterior thigh pain. I was able to get an appointment with my Opthamologist, who took OCT images, he looked worried at first. I found out today that the first 2 sets of OCT images showed artifacts in both images. Today I took three OCT images (they were trying to rule out technical issues) and the artifacts persist. This is contrary to the images I took 2 years ago. The provider POV of my optic nerves for July's and today's appt showed worsening (but still mild, I asked for a scale and he said on the scale that starts with an F-- I cant spell it -- it was a 1) blurred margins from my 2024 images and the provider notes slight but viewable vein obstruction. He noted my dry eye symptoms are separate from these findings and so is my Ulcerative Colitis autoimmune disease (He is the first provider out of the many I asked for help to do all these testings but I have a hard time ruling out my autoimmune disease is not somehow influenced or influences these changes). I dont know. I empathize with you. I have a MRV of my brain and a lumbar spine puncture scheduled as well as another test I cant remember, but I honestly believe that I will not get any answers or it will be a very long time before I get answers. The pain is unbearable at times. The ER doctor I went to back in March refused to treat me. The pain was so bad I couldnt speak. At times the pain is bad that I cannot sleep and that can deter quality of life quite a bit. I am not new to chronic pain but that doesnt mean at times I think not being alive is better than being in pain and being dismissed or being told you dont present as someone who's in pain. I hope you have found some relief by now. It would give me a bit of hope.