Insurance company is denying Evenity
I just got a call from my Dr stating my insurance company BCBS is denying Evenity. They want me to do Prolia first. I told the person who called me that Prolia is the one drug I didn’t want to do. That there is research showing if I do that first the Evenity won’t be as effective, also that Prolia rebounds quickly. She agreed with me, but this is what insurance company wants done first. I said it’s ridiculous they get to dictate my healthcare. Again she agreed. She told me to think about it and call them back.
I was diagnosed back in February with a -2.7 in spine. Hips are still in osteopenia, don’t remember those numbers. I decided in May to go on Evenity and it’s been a battle ever since. A couple years ago I tried Fosomax when I was still in osteopenia and had reaction of severe pain in my right hip, so I stopped taking it after 3 weeks. I’m afraid if I can’t tolerate Fosomax I’m not going to tolerate Prolia. Not sure what to do at this point. 😣
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@rudysmom
That could/would have a big factor in why you might nor get Tymlos or Evenity
@rudysmom What about teriparatide (Forteo)? It is now available in generic form, so it is less expensive for the insurance company than Evenity but it is also an anabolic bone-building drug. Maybe insurance would approve this?
I would ask my doctor about teriparatide, and I would self-pay if insurance denied that and assuming that I could swing the cost, which many can not. Teriparatide costs about $850 per month via self-pay and you need to do it for 2 years. But you only have one set of bones and, as you said, anabolic bone-building drugs are not as effective after taking denosumab (brand Prolia) so there is no going back once you get far down the Prolia path.
A long shot, but there was one person on this site who got a big discount from the drug company when she did self-pay of Evenity (romosozumab) after insurance denial. Others have said that there are no discounts if you are on Medicare and I assume that includes Medicare Advantage if that is how you have your Blue Cross Blue Shield insurance. Some bone experts are now saying it is only needed to take Evenity for 6 months instead of the full year so that can help reduce cost, but it will still be a huge financial investment. So investigate that as well (Dr. Benjamin Leder for example.)
https://www.costplusdrugs.com/medications/teriparatide-560-mcg_2_24ml-solution-pen-injector-2_24/
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1 Reaction@paxbar
I’m only 61 so I don’t have Medicare yet, but I’m assuming the process is similar for regular BCBS. I called Dr office today and left a message with Dr’s assistant asking if anyone was advocating for me. Waiting to hear back. If they refuse then like you said I’ll find a new Dr
@paxbar excellent summary of what to do. Don’t give up.
My insurance company initially denied. The doctor did an expedited appeal and it got approved within 48 hours. The healthcare provider can do an internal appeal and an external appeal if needed. Sorry you are going through this, I know firsthand how stressful it is. It seems to be the insurance companies job to first deny if you don’t tick every requirement.
@kfhoz
It was weird that Dr only suggested Evenity. Never mentioned Forteo or Tylmos. I’m going to wait and see what they say when they call me back. If they’re adamant about Prolia I’ll go elsewhere. Or see if I can get a break financially with the company themselves.
@osteopatient2026
It’s just crazy that you either need to fracture or have worse numbers to get a drug that can help build bone. My hope was that if I did Evenity I’d get pushed back into osteopenia and then do a year of a biophosonate and hopefully have a drug holiday. If this doesn’t work out then I’m going to contact midi health and look into HRT. Maybe that’ll help keep things stable for a while. 🤷🏻♀️