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Profile picture for Cynaburst, Alumna Mentor @cynaburst

@luckyhowreyou It is an open heart surgery that reduces the septum and trims it away from the mitral valve which is what causes obstruction in obstructive HCM. It is a surgery that I, Ron, and many others have had to help us feel better.

These days there is a newer option instead of myectomy. There are medications called myosin modulators such as Camzyos and Myqorzo. These medications can help obviate the need for surgery. But they are only an option for obstructive HCM at the moment. The hope is that their indication will be expanded. There was a positive trial called ACACIA HCM of the drug aficamten or Myqorzo which showed positive results in non obstructive HCM.

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Replies to "@luckyhowreyou It is an open heart surgery that reduces the septum and trims it away from..."

@cynaburst I am afraid I have to have that because due to my stomach problems cannot. Tolerate meds. How long is the recuperation period and is it painful. How long in the hospital