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Profile picture for Lisa, Volunteer Mentor @lls8000

@mally007, I hope the lobrena is going well for you! I'm sure switching medications after six years wasn't easy. I've been taking alectinib for 6 years, 4 months, and counting... Scans are scheduled for next month.
How are you feeling on the Lorbrena/lorlatinib?

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Replies to "@mally007, I hope the lobrena is going well for you! I'm sure switching medications after six..."

@lls8000 I only take half a dose as my oncologist says the side effects are very harsh. I had the random muscle aches and pains when I first started. I take it in the evening as my oncologist also said that people would have different feelings/hallucanations so I thought maybe I could just sleep through that. LOL
I don't have the fatigue that I had on alectinib. I have scans and my 3 month brain MRI at the end of the month. It was a year ago almost to the day that I had my yearly brain MRI and I had 12 spots. They were small spots and I had them zapped and they haven't come back yet! Good luck on your scans next month!!