@maureercria - have you tried nasal pillows? I just made 2 changes - from CPAP to BIPAP, and from full face mask to nasal pillows. I was on CPAP for 15 years, and had ongoing leakage problems. I have to choose side or back, too. Because of neuropathy pain in my feet, I have to change position often,

Have you tried propping up the head of the bed?

Jim

@maureercria you sure have a lot of conditions interfering with sleep, I’m sorry to hear that. I know that my biggest problem is very frequent bathroom trips. Most nights it’s hourly, last night it was more frequent than that!
I often sleep on an elevated pillow also, for Barrett’s Esophagus. I use a wedge under my pillow. Sometimes that gives me a sore neck so I often don’t use the wedge. We also have blocks under the bed’s legs to raise the head end of the bed. This was recommended by the doctor.
Good luck with all of this, I hope you are able to find some helpful solutions.
JK

I have used the wedges under my pillows. I also have Barretts syndrome with pre-dysplasia. I have tried the blocks under the head of the bed. I kept sliding down the mattress. These were blocks made for that purpose of Barrett's Syndrome. I make bathroom trips at least once an hour and ususally totally get about 5 to 6 hours of sleep at a time, sometimes less. I found that I did lessen abdominal pain or spasms by eliminating the Tylenol PM because I was only sleeping about 4 hours altogether at that time. It was nice lessen that. I am now trying out a urinary urgency blocker and full strength of IBS with Constipation pills. They say I have to keep taking them for several months to see if they help.

@maureercria - Myrbetric has helped me a lot. No more extreme urgency, and fewer nighttime bathroom runs. I never expected sleep to present such challenges. I can see how the blocks would make you slide down. I wonder if there's a solution for that.

Jim

Grateful for your suggestion.  Will take information to my MD.   Jim, this web site is just amazing!
It's just joyful!  

@jimhd. Myrbetric was prescribed for me once but I didn’t end up using it. It was when my health problems were not yet diagnosed and I didn’t want to add anything else to the mix. I think I will ask my transplant team if it’s ok for me. At the time I was considering it I heard that it was quite expensive. Is it, and if so does your insurance cover it?
JK

@101082101082 - I've learned a lot over the past year about my peripheral neuropathy, much from Mayo Connect. I'm glad you've joined us, and continue to learn more about what's going on in your body, as well as receive the support of others who understand.

Jim

@contentandwell - jk - I take a variation called tolterodine, as Myrbetric is indeed expensive.

Jim

@jimhd so is tolterodine a generic of myrbetric? If so I am surprised, I didn’t think that myrbetric had been around long enough for generics to be available. If you are finding that it does help I think I will try to get a prescription for it again. Did you get the Rx from your PCP or did you have to go to a specialist? I had been on vesicare for a while but that was eliminated when I started having episodes if confusion which of course were HE.
JK

JK @contentandwell - I believe that Tolterodine is the generic for Detrol, which is a twin sister of Myrbetric. I was prescribed it by a urologist, but I'm sure a pcp could prescribe it. The pharmacist was a big help finding a cheaper alternative.

I hope it will help you as it has me.

Jim