@debroo Welcome to Connect! You found a discussion title that began almost 10 years ago when the HCM (hypertrophic cardiomyopathy) group began in the early days of Connect! Since that time, many. many people - and now you - have joined the right place for big-hearted people. Your question about reversing HCM is an excellent one, each of us who has been diagnosed with it and never heard of it before had that very same question.

We share experiences and information without giving medical advice. It is very desirable to learn all you can about HCM. Knowledge is power and learning helps you generate questions for your doctor to enhance your understanding.

As you may have read from a couple of the comments, HCM is inherited. My dad was undiagnosed except he mentioned he had a heart murmur, and I remember he easily became SOB (short of breath). I am trying to be sure you and others know what all the acronyms represent, there are so many to be understood when learning about HCM and receiving treatment.

I am not a medical person, but I am aware that this horrible disease cannot be reversed. Once we are diagnosed, we need to remain under the care of a cardiologist. It is very, very, highly recommended that HCM patients receive their care at a COE (Center of Excellence) for this disease. The doctors there see a high volume of HCM patients in all stages and different presentations of this disease. We are all so different, their collective knowledge from training and experience result in the very best treatment for your very unique case of HCM. My home cardiologist was trained at a place that is now a COE, and he sent me to Mayo when I needed surgery.

HCM is a managed disease. You may be told to do nothing except get checked on a regular schedule - or - if you have symptoms, medication or surgery may be recommended. To help you learn more, you may wish to read this link: https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/diagnosis-treatment/drc-20350204. This link repeats the other a bit, but does have some additional facts https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198.

I also recommend asking about genetic testing. In 2022, "they" looked at 123 different genes known to cause HCM, mine was among those as yet undiscovered. The result is that I told all of my blood relatives and my son and grandson get echocardiograms, every 5 years for my son and every 2 for my teenaged grandson.

I also recommend looking at 4hcm.org which is the website for the Hypertrophic Cardiology Association. Please schedule an intake interview, these people are unbelievably helpful in guiding you on your journey in living with HCM. There are even zoom meetings on different topics related to HCM.

When did you discover you have HCM? How are your symptoms impacting your life? Has anyone else in your family been diagnosed? What has your doctor suggested for you so far? Again, welcome to Connect!