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A Summary of My Multiple Myeloma
Blood Cancers & Disorders | Last Active: 19 hours ago | Replies (86)Comment receiving replies
@2024fightthefight
Hi Stu, I was wondering if you would mind sharing your experience going through Campath and then to Stem cell to your current experiences .
Will I be able to be active again? Traveling to see my grandbabies and Bucket List adventures?
Did you take any breaks while on Campath to go on a domestic trip?
Did you find that your arms got sore from the 3 times a week poking?
I really appreciate being able to chat with you, Stu!!
You have given me hope!!
Thanks, 😊
Sheila
Replies to "@2024fightthefight Hi Stu, I was wondering if you would mind sharing your experience going through Campath..."
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@saga2
Shelia great to hear from you. The answer to your 1st question is yes. You can ask me anything regarding my experiences with T-PLL. However I would recommend you take your journey one step at a time. As far as taking a break for a domestic trip, I'd ask your Doctor about that. I did my chempath 3 times a week for 12 weeks non stop no breaks. After chempath there was about a 3-4 week pause at which time I was in full remission and then I was admitted to the hospital for a stay of about 1 month for the transplant. I was under the impression that at the start of chempath I had to become "the boy in the bubble", no close contact with people other than my immediate care giver. But again talk to your Doctor and or Transplant team about these things.
As for your question regarding "Will I be able to be active again? Traveling to see my grandbabies and Bucket List adventures? " that can only be answered by your Doctor or Transplant Team. I'm a golf nut and I bugged my Doctor and his Transplant Team from day one, "when can I get back to golfing". I think finally wore them down, I had my transplant at the end of October 2024 and wasn't allowed to play golf until mid April 2025 but if I were in the clubhouse I had to be masked and isolated from every one. On the course if I were walking I could be unmasked. It wasn't until August of 2025 that I was allowed to be in an enclosed area unmasked. FREEDOM at last. That was a big day.
As to getting poked 3 time a week. 99% of the time it was flawless, most times never even felt the needle go in, BUT there was one day, I must not have been properly hydrated because it took 9 times to get that IV needle in. Every one has a bad day every now and then.
So let's get you through Chempath before you get too far over your ski's about the transplant and recovery. One step at a time. Again if you have any question about YOUR journey talk to your Doctor and the Transplant Team.
Remember "Fight the Fight". You will get through this and you are not alone.
Until our next conversation.
Stu