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Experience with National Jewish Health?
Has anyone been to national jewish health that can share there experiences? My dr is recommending a visit to them but I live in wa state so would be quite a journey. I’ve been dealing with mac for 4 plus years. Taking azithromyacin and ethambutol. Couldn’t tolerate the big 3. Also on clophazamine and nebulizer and airway clearance 2 times day. I’m not really sure what else can be done but would love any input.
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HugInterested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
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Many, many of us on this site have made the "pilgrimage" to NJH, myself included. My PCP also recommended I go and I'm very grateful to him for that. I live in southern AZ and take the trip to Denver at least twice a year.
If you can swing it financially I'd highly recommend it. Keep in mind that the first visit may last up to a week for all the testing. My insurance (Medicare and BCBS Federal) paid all the medical expenses. If you call NJH they'll help you with the insurance end of things.
You can search this forum for lots of info on what to expect and where to stay in Denver.
Good luck!
@coffcoff thank you for that info
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1 Reaction@coffcoff I would be interested in hearing what they do for you.
@britchic Type "National Jewish Health" into the search bar under the Bronchiectasis and MAC heading when you first get on this site. There are tons of discussions about NJH on this forum. Everything you want to know and more!