still working with small fiber neuropathy

I also have sFN with autonomic disfunction, waiting for some more tests to be done. I was prescribed anphetamines for the brain fog but I refused to take them because of the secondary effects, my doctor then switched them to vitamine C and arginine suplements. I also take magnesium, alpha lipoic acid, l carnintine, B12 and lots of caffeine , etc.. It helps a little bit and allows me to keep up working.. I haven 't caught a cold in the but I continue to feel drowsy and sleepy but at bedtime I sleep bad because of the neuropathic stress I feel in both legs even though I take pregabaline and amitriptyline. I sleep with a cushion under my lumbar area, I feel better that way because I also have stomach issues, I have restless sensations all over my body

I just popped on here because i’m having severe agitation and symptoms from my small fiber neuropathy. I’ve had adverse reactions to all the antidepressants. Gabapentin hardly takes the edge off and keeps me in a zombie state. I’m concerned Lyrica would do the same. I was prescribed a cream compound which has five medicines in it. I broke out in hives and I think it could be due to the sunlight hitting it. It just makes me tired and doesn’t take away the crazy buzzing nerves either. My legs are very weak and I’m having all sorts of autonomic issues. Is anybody else suicidal with this? I cry every morning because my nerves are so on edge and uncomfortable. I can’t stand the way they feel. I’ve been to my neurologist numerous times and he said he would have to send me to a pain management doctor if this doesn’t work. I feel so helpless there’s no way I could work in this condition because I’m literally crying most of the days just enduring the terrible sensations and I don’t have strength or the capacity to deal with any sort of stress.

@wiseowl Hello everyone I have a question ⁉️ I have had cliac for years. My question is does anyone have cliac and SFN ? Or health issues 😕

Welcome @almazno0209, I think many of us, including myself have multiple conditions along with our neuropathy. Wondering if this newsfeed post will answer your question.
-- Does Celiac Disease Contribute to Other Autoimmune Diseases?
https://connect.mayoclinic.org/blog/gastroenterology-and-gi-surgery/newsfeed-post/does-celiac-disease-contribute-to-other-autoimmune-diseases-2/
Have you been tested or diagnosed with small fiber neuropathy?

@stacy4man
Don't give up. I am dealing with the same issue- the pain and burning. I have been to 31 doctor visits in the past 10 months; they all say the same: just give it time and take EB-N6.
The nerve endings could all slowly grow back. October will be the 3rd year of no relief.
So you are not alone, I know it seems like it, some days I just don't get out of bed because I can't deal with my foot pain. I feel so helpless and scared, as there is no doctor who can help us. If it is cancer, they can cut it out sometimes; if it is a rotator cuff, they can operate. But I am at the end of my rope too. I don't know the next step. Yesterday was my last chance to see a vascular doctor, but he said everything was good; it must just be SFN. So don't panic; things will get better. It just takes months and months vs a few days. I have never had anything that did not heal in a week. So this 3-year thing is outside my comfort zone. I am jealous of watching people walk and play tennis, jump off a brick wall, and run in the movies. But if the meds make you feel bad, just say no to them. Do what makes you feel good. Sometimes soaking in Epsom salts feels good; sometimes Ice. Just don't be hard on yourself, because we are dealing with things we have never had to before, and we feel left out of our own lives and activities. I don't even want to see friends. Treat yourself; try to use breathing techniques. I know..... I really don't mess with them, but when I do, it does seem to calm me down.
Just find some small things you can do, and it's fine that you can enjoy doing something that takes your mind off your feet.