Thank you for helping me and sharing what happened to you, igorp. I think it just shows that everyone's progression is different. Is there any reason you can think of why you may have stayed stable so long (like healthy diet, exercise, keeping stress down, support from loved ones, etc)? Can I ask what was the reason that you eventually started treatment - was it when you got to a certain blast percentage or when you got a certain mutation?

What you mentioned about my blasts declining is pretty much what my doctor was explaining to me yesterday, that the decrease is most likely due to sampling area. I understand that, and the fact that this mds isn't just going to suddenly go away. But, I also feel like if the change went the other way from 8% to 9-11%, the doctor would probably have said that I worsened instead of being stable... so I am still taking it as some sort of positive. Also, I got the rest of the results back, the DDX41 339 stayed at 49% and the DNMT3A mutation went from 8% to undetectable .. and the DDX41 525 went from 10% down to 3%. Again, this could have just been a difference within the sample taken as well I guess. Does anyone know if this is typical for mutation percentages to go down like this, or do they usually just keep increasing?