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A Summary of My Multiple Myeloma
Blood Cancers & Disorders | Last Active: 21 hours ago | Replies (84)Comment receiving replies
@2024fightthefight
Hi Stu! So nice to meet someone else that has TPLL.
My doctor believes that I have had it since January 2025. But I was officially diagnosed in August 2025.
I have noticed that my energy level has dropped since I was taken off steroids as part of the pre-Campath cocktail in week two.
I am curious, when did you get the Benadryl cut in half? I think I may need to ask my doctor about doing that.
I am impressed with your remission results- 21 months! That’s awesome 👏.
Warmly, Sheila
Replies to "@2024fightthefight Hi Stu! So nice to meet someone else that has TPLL. My doctor believes that..."
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@saga2
Shelia great to hear from you.
Well Shelia got to tell you, the 21 months of remission isn't anything I did. It is completely due the incredible transplant team I was assigned to. From day one the experience could not have been better.
Now as to the Benadryl, I believe it was changed in week three. I would offer to you, ANY TIME if something does not feel right, there is a pain or soreness let your care staff know right away. They can not read your mind. There is nothing too little not to bring up. What you think is minor to you may be major to them.
Good luck in your Chempath, not that you will need it, something tells me you are going to sail through it.
Remember "Fight the Fight"
Stu