← Return to Systemic inflammatory response years after liver transplant: Ideas?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@ktcholangio01, I can only imagine your paradoxical mixed feelings of being grateful for the life-saving, first time transplant patient and consequently as the first patient in South Australia to have a liver transplant to treat hilar cholangiocarcinoma, there is little data and knowledge for your team to draw on.

Here is an article from Mayo Clinic that may help or, at the very least, affirm what you already know.
- Chronic inflammation: What it is, why it’s bad, and how you can reduce it https://mcpress.mayoclinic.org/dairy-health/chronic-inflammation-what-it-is-why-its-bad-and-how-you-can-reduce-it/

I realize that coming to Mayo Clinic for a second opinion may not be realistic. However, often specialists from around the world will consult with Mayo experts. Are you treated at an academic (teaching) medical centre?

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Replies to "@ktcholangio01, I can only imagine your paradoxical mixed feelings of being grateful for the life-saving, first..."

@colleenyoung
Thank you Colleen 🙂
It looks as though I may have a rare auto-immune disorder named amyopathic antisynthetase syndrome, however, this may also be paraneoplastic.
Hope to find out more this week.
Appreciate the information you've shared 🙂