I am not happy with my doctor delaying treatments , he refuses to give me platelets infusions or Neupogen injections.Neupogen should be given daily to keep neutrophil at least 1.50 ,saying it has to be 0.5 or less before he will give an injection waiting for counts to raise on their own, not happening.
Started my last cycle at platelets 23 I asked for platelets infusion before cycle to boast because I knew at 23 platelets the treatment would take a toll on me,23 after a 2 week delay. I knew they would drop drastically they did 4 yes 4.
Lot of friction between us , Asked to change doctors to day Wednesday to another doctor taking patients for AML Leukemia refused saying they don't allow switching doctors .what do you do when you don't trust your doctor. He is going to delay my cycle waiting for my counts to raise on their own, supposed to start my cycle tomorrow 13, he said he will discuss it with me next week it is like broken record. Ask for rescue drugs to avoid delays and he refuses. He said on Jan 9 2026 he could not do any more for me wanted to put me in hospice.I asked him to continue treatment when he told me I was in partial remission wanted me to go to nursing home I went out of state came home healthy in remission. Doctor and nurse here were amazed how well I looked I was sent home with my counts at a normal level out of state doctor did not want me to travel otherwise.
Doctor out of state arranged a targeted treatment I take my pills at home . My doctor now just has to follow protocol , follow up on blood work and give Placates infusions or Neupogen injection and he won't
I am so depressed thinking déjà vu all over again