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Replies to "@nancyra I have ET with Calr No hair loss and no mood swings for me. Besremi..."
Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (41)
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@nancyra
I have ET with Calr
No hair loss and no mood swings for me. Besremi has been very successful for me. I’ve been on it for just over a year and have been in the normal range or close since December. (Started at 1400) HU only ever got me to 600s. The highest besremi dose was 400 for me and now I’m down to 200. The main side effect is being tired and that is probably the ET not the drug. I do get dry eyes.
Replies to "@nancyra I have ET with Calr No hair loss and no mood swings for me. Besremi..."
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@cariadk
Thank you for your reply!
Ok good to know. As with starting anything new the list of potential side effects is always a scare. My hem says we will start low and move higher as needed rather than the other way round.
Hopefully proves will come soon..