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Profile picture for 2121 @leslie2121

It would depend upon your lab numbers- what they were and have been trending. Symptoms are also important to be aware of too. But usually another bmb is done if there’s a big change in your numbers.
Have they remained stable in the last year and a half?
For example, I had a bmb 5 years ago when mgus was first diagnosed but not needed another one - so far.

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Replies to "It would depend upon your lab numbers- what they were and have been trending. Symptoms are..."

Hi @leslie2121 ,
Thank you for sharing your thoughts about this. Interestingly in my case, the only day my labs were at all different was the actual day of my bone marrow biopsy which was done in February 2025 with labs ordered STAT that day. They were done at a lab location I have only used that one day and do not care to use again. That bone marrow biopsy day only, my platelets decreased 400 on their own with me taking no meds (I turned down Hydrea which I was offered) and my red cells were lower than normal. Then my diagnosis was changed from ET to primary myelofibrosis. My labs before and after the bone marrow biopsy day showed high platelets, normal red cells, normal hemoglobin, slightly high white cells and everything else in normal range. My recent lab done July 2026 shows these similar results. So, yes, my labs are stable. My labs are not changing at all since 12/2024 when this entire saga began. I had no symptoms then and continue to have no symptoms. I also have no health issues other than a very enlarged not at all painful ever right ring finger PIP joint which specialists continue to disagree on the diagnosis of. I do not feel that I need another bone marrow biopsy at this time.