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Transplants | Last Active: 14 hours ago | Replies (4)
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Thank you for your response. I sent the same message also to my team care in Mayo transplant center, waiting, as I don’t know any other patients in the region I live in. I also thought of your idea to have a backup amount, this Envarsus is brand name and my information from searching online is that 3 days cost $200 out of my pocket, so 2 weeks will be $1000 out of pocket. Before I do that, I thought to ask other patients about experience with BIRDI or local pharmacies in small towns. Thank you. Magda
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@future
Hello and congratulations on your healthy transplant! I am 6 and 1/2 years post kidney transplant.
I use CarelonRX (MyRx@pharmacy.anthem.com). Thru my Anthem insurance. Not sure but I believe most insurance plans have a version of the specialty RX program. If your Insurance has such a program, that is the one I would go with.
I used to get mine through my local pharmacy, but had a scare when one month they simply did not have the drug in stock. Evidently a new person had had a transplant in the area and claimed the meds before I did. That’s when I switched to Specialty RX.
The good news is most pharmacies will make you a priority. So the month that I had trouble with my local pharmacy they contacted all other pharmacies in the area and got medicines to me within 12 hours.
Specialty RX have been great to deal with. And yes, they can overnight it if necessary.
My meds used to be on a monthly basis and I would call in when I was down to seven days of meds and they always got it to me in time.
I contacted my doctor last year and changed my prescription to three month prescriptions and they were able to do that.
However, I was not taking the type of medication you are taking.
Ultimately, if you cannot establish a reliable supply chain of the medication, you’ll need to contact Mayo to let them know.
Perhaps, they will need to change your medication to one that is more readily available. I do not think it will come to that. But it is a possibility.