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Replies to "I am also waiting on insurance approval for Besremi. I have ET Calr - Hoping to..."
Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (41)
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I am also waiting on insurance approval for Besremi. I have ET Calr - Hoping to hear feedback from anyone with similar on success and side effects. I’ve been on HU and Anagrelide, neither of which I can continue to take . I am in USA so experience with insurance outcome appreciated. It is recently approved as treatment for ET.
Especially worried about mood swings and hair loss.
Replies to "I am also waiting on insurance approval for Besremi. I have ET Calr - Hoping to..."
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@nancyra
I have ET with Calr
No hair loss and no mood swings for me. Besremi has been very successful for me. I’ve been on it for just over a year and have been in the normal range or close since December. (Started at 1400) HU only ever got me to 600s. The highest besremi dose was 400 for me and now I’m down to 200. The main side effect is being tired and that is probably the ET not the drug. I do get dry eyes.