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Replies to "@cariadk How are things going for you now? Your last year post was helpful. Are you..."
Blood Cancers & Disorders | Last Active: 8 hours ago | Replies (41)
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@cariadk
How are things going for you now? Your last year post was helpful.
Are you still on Besremi & any significant side effects?
My Rustfertide Trials Doctor has just applied to put me on Besremi, now that’s it has been approved in the US & Canada. My Hematocrit is steady at 45 & my Ferritin has gone from 5 to 120 with Rustfertide which should be approved this year.
Replies to "@cariadk How are things going for you now? Your last year post was helpful. Are you..."
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@calbaric
It’s going well. My dose has been dropped to 200 for several months and my platelets have fluctuated between 450 and 560. I get tired for a day or so after the dose and my skin is very vulnerable to any little ding but that could be my age and need for collagen. I still get dry eyes periodically and use systane at night when that happens. Overall my hematologist and I am pleased with my progress.