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Colleen Young, Connect Director avatar

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 11 hours ago | Replies (1111)
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Profile picture for lmcjax @lmcjax

Hi All. I was diagnosed with GIST in November 2026, had tumor removed right away and am on Imatinib for life. Glad groups like this exist to support each other.

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Colleen Young, Connect Director | @colleenyoung | Aug 23 10:07am

@lmcjax, welcome. I invite you to take part in the GIST-related discussions, like this one:
- Anyone have experience with gastrointestinal stromal tumor (GIST)?https://connect.mayoclinic.org/discussion/gist-cancer/

See all: https://connect.mayoclinic.org/group/sarcoma/

I bet you would have a lot to offer.

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pammyrose66 | @pammyrose66 | Aug 24 12:58pm

@lmcjax I was diagnosed with GIST in February 2026. Stage 4 - has a tumor by my pancreas and caused lesions on my liver. I'm on Imatinib too. Where was your tumor? How are you doing on Imatinib?

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