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Diagnosed with sarcoma? Let's share
Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.
As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.
Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?
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HugInterested in more discussions like this? Go to the Sarcoma Support Group.
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He is being treated by doctors at UC Health Anshutz in Aurora, CO. I read that they shouldn’t use radiation on his type of cancer, but they did radiation on his initial tumor in his back. I don’t know if an ablation would help either. We will see if the chemo has done anything in a couple weeks.
Hi, I was diagnosed with synovial sarcoma in the soft tissue of my left knee 33 years ago. It was treated at Mayo Clinic in Rochester. I am a survivor.
Hi All. I was diagnosed with GIST in November 2026, had tumor removed right away and am on Imatinib for life. Glad groups like this exist to support each other.