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Red light therapy idiopathic neuropathy numbness tingling
Neuropathy | Last Active: 3 days ago | Replies (23)Comment receiving replies
@cwloeffler thank u for your input. I found one on the top of neurology teams at mass General in Boston and they have done. absolutely nothing for me ?They tell me this will be progressive overtime and we can give you medication for pain. I could not be more disappointed, even though it is idiopathic, which we know means they don’t know the cause I feel that nobody is even trying to discover the cause…it almost feels like they’re shrugging their shoulders. They even said doing the EMG and they would do it if I want it, but it would probably not change the protocol! Why would I put myself through that discomfort for no reason at all ?people in this kind of discomfort are absolutely desperate, I am just looking for some hope …unfortunately the scammers know that and take cash only for what they tell you is a cure. I wish there was somebody out there I could trust who actually had some interest in finding out what the issue was.
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@lindamaegirl
I feel as though I could have written your post Linda. I have been trying to find the root cause of my neuropathy symptoms for over 3 years. I have been sent to every specialist imaginable and multiple EMGs that say my pain, numbness and tingling is not neuropathy. The only treatment option offered is gabapentin (docs) or Tumeric (ai) Meanwhile, my symptoms continue to progress and my quality of life deteriorates. So frustrating and sad. Five years ago I walked five miles a day - today I can barely make it around the block. No hope in sight
@lindamaegirl I feel your frustration. I have been trying to find resources and doctors to help me control this horrible disease with no luck. They just want to test again and then tell me “yes, you have idiopathic neuropathy “. 😡
Sometimes I put on one of those compression socks and it offers some relief. I also have a red light therapy shoe I bought on Amazon that I use every morning and night. Some days are better than others. 🤷♀️
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@lindamaegirl I have tried many test to see what caused my neuropathy. Finally figured it out that I have Amyloidosis. Get tested for Amyloidosis from your doctor.