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Heather McFarland avatar

A Summary of My Multiple Myeloma

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (91)

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Profile picture for 2024fightthefight @2024fightthefight

@loribmt Thanks for the reach out. I truly do not know how to answer your question "How has your recovery been?" I have nothing to compare it to. The best I can do is say to you what I have said to all my friends and family when they have asked that same question for the past two years and that is I feel fine, I am well. If it weren't for a Doctor telling me that I am sick, I would never have known it. That is not to say I didn't have any issues, I did. But what ever they were I was told by my oncologist or the P.A's that they would resolve themselves in a month or two, which they did. The biggest issue I have now 21 months post transplant and trust me I understand it sounds a little petty, is the struggle of low energy and low stamina and the Boom and Bust of an energy burst. I have an idea of how fortunate I am. Most people diagnosed with T-PLL never make to the transplant stage. As far as Graft Host Disease it has not been a problem so far.

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Replies to "@loribmt Thanks for the reach out. I truly do not know how to answer your question..."

@2024fightthefight Your recovery sounds on par with the rest of us who have had a bone marrow transplant. Energy and stamina can ebb and flow. In the first couple of years post transplant I often referred to my energy as that of a puppy. It would come in bursts and I felt I could move mountains for a few days and then, plop…I was wanting to rest on the sofa with a good book for several days. There are adaptations for sure but without the transplant the alternative wasn’t very positive. Happy to hear you’re doing well with no GVHD.

At this point you shouldn’t even be considered ‘sick’. ☺️ Generally speaking, after our transplant, if we go 22 months without a recurrence, statistically the odds of a relapse drop dramatically. Those were mentally liberating words from my transplant team! So if you’re feeling fine, I’d take that as a huge win and keep enjoying your second life to the fullest!