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Replies to "@loribmt Hi Lori, my blood cancer specialist at UVA’s Cancer Clinic told me last month that..."
Blood Cancers & Disorders | Last Active: 11 hours ago | Replies (41)
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Replies to "@loribmt Hi Lori, my blood cancer specialist at UVA’s Cancer Clinic told me last month that..."
@csrb7007 I just met with a highly experiencd blood cancer oncologist and she strongly recommended me to stay on Hydroxyurea if it’s working and that the other two medications have serious strong side effects and should be taken only if the current treatment isnt keeping my numbers at bay. So for now I’m sticking with what I’m on. Good luck!
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Hi @csrb7007 I would expect everyone going through their cancer journey wants to hear the words, “You’re cured!”. However, oncologists seldom use the word cure.
From my own experience with an aggressive blood cancer, even though I’ve been free of my disease for many years, my doctors will refer to my experience as a durable remission.
Most doctors will opt for remission or NED (no evidence of disease) because even after treatment they’re rarely able to say every single cancer cell is gone. But the longer a person remains cancer free the lower the risk of recurrence.
For some patients with blood cancer, because of underlying mutations, their disease may not be considered curable but often medications can keep the cancer cells from replicating, allowing patients to go on enjoying their lives with a more chronic-like condition, if that makes sense. Remission is a powerful word and doesn’t always need to be followed up with cure.
In your case, Besremi is being recommended to treat your polycythemia vera by targeting the JAK2 mutated gene. I found a pretty cool video you might be interested in watching from globalmpn.org:
https://www.globalmpn.org/post/mpn-hope-how-besremi-and-clinical-trial-is-managing-my-pv
Advances in our blood cancers and conditions continue to bring us potentially closer to, dare I say…a cure. ☺️
Have you begun taking the Besremi yet?