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Profile picture for gloaming @gloaming

@californiazebra Yes, and it's the same with prostate cancer. The patient is highly more likely to die in a road accident, falling down stairs, or from a bad case of food poisoning than they are to die from prostate cancer. AF is the same. It's hellish for some, quite tolerable for others, and some don't find out they have AF until someone with training looks at them wide-eyed and asks, 'Do you have AF? You're fibrillating right now.' Who knew!?

Once again, though, the sober reality is that uncontrolled/unmanaged AF will cause degradation in heart structure and in heart function over many months or a few years. So, unless someone just doesn't care, it's best dealt with sooner rather than later because the success rates of the various 'remedies' (there is no 'cure' for AF, just palliative management, and this includes ablations) falls as the complexity and advancement of the disorder progresses.

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Replies to "@californiazebra Yes, and it's the same with prostate cancer. The patient is highly more likely to..."

@gloaming
Hoping to get an ablation soon. Despite the fact that I’ve had at least 150 long afib episodes in the past 5 years, my second opinion EP says if he can find a safe path to my heart (rare venous anomaly) there is a 90% chance he can stop my vagal and PV afib in one ablation. Let’s hope there is a safe path and one and done plays out. I’m one of those very symptomatic people with a multitude of afib triggers.

The first EP told me 2-3 ablations and maybe that will do it, but it will keep coming back and you’ll need more ablations in a couple years. Who would sign up for that (especially since I have trouble with anesthesia)? And he had no plans to do any mapping despite me showing him an MRI report indicating I have a rare venous anomaly as an incidental finding. Definitely get a second opinion.

As for afib not being deadly, that always feels a little misleading to me. If afib can cause a stroke and a stroke can kill you then in my book afib can kill you. If someone fell off a cliff and died, you wouldn’t say the fall didn’t kill her, it was the landing that killed her. You get my point. If a=b and b=c then a=c. Maybe it’s more accurate to say you likely won’t die from managed afib but you very likely could die as a result of unmanaged afib.

In any case, I do think we’re lucky to have solutions. I do agree on treating it. When I had that last TIA with aphasia (could only speak and text gibberish and was alone at night) that was pretty scary and when it started I assumed it was a major stroke starting and this was either curtains or disability. Luckily it stopped in a few minutes but it had some lingering effects. It did light a fire under me to deal with the afib though so something good csme out if it! Best of luck to all! ❤️