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Primary Sclerosing Cholangitis (PSC)
Transplants | Last Active: Jun 10 6:35am | Replies (93)Comment receiving replies
When I look up stuff for PSC, I often get info for PBC. Why? What are the best foods for PSC. I know there are several diets out there and I know some people are hung up on fats and carbs, pro and con, but disregarding people’s ingrained beliefs, what would be the most healing foods for this condition?
Replies to "When I look up stuff for PSC, I often get info for PBC. Why? What are..."
Hi, @sandyjr. I have located some nutritional information for PSC patients that I am sharing with you. But first, I want to remind you that PSC is a chronic disease, and one must be careful to maintain a healthy lifestyle and diet. It is necessary that your daughter follow the advice of the doctor who is supervising the PSC.
http://pscpartners.org/nutrition/
In the Nutrition section on this website it reads "There is no specific PSC diet and most patients do not have to make any changes, except to continue to eat in a healthy, sensible way. But many PSCers have related digestive issues, such as ulcerative colitis and other gut problems, and need to stick to a specific diet, as advised by professionals."
I also recommend this link to the Living with PSC Podcast. http://pscpartners.org/living-with-psc-podcast/
Each podcast is presented by a leading PSC expert. Any and All of them are worthwhile for both you and your daughets to view. I suggest that you both begin with:
EPISODE 2 – DR. CHRIS BOWLUS: DIET & EMERGING TRENDS
EPISODE 10 – DR. VALENTINA MEDICI: NUTRITION AND PSC
Sandy, What did you and your daughter learn from the podcasts that will be helpful for her to maintain a healthy diet?
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You will get better results searching for the condition when fully written out instead of the initials. I think you are talking of primary sclerosing cholangitis. I may have it misspelled. If so I came up with this site: https://pscpartners.org/nutrition/ . I honestly have never heard of this one... but there are many conditions I have never heard of.
ZeeGee