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Primary Sclerosing Cholangitis (PSC)
Transplants | Last Active: Jun 10 6:35am | Replies (93)Comment receiving replies
@rodney9999, I received my simultaneous liver and kidney transplant for PSC in 2009. I don't remember having a specific lower leg pain with swelling . However I did experience swelling in my legs, feet and ankles (edema) along with fluid accumulation in my abdomen (ascites). I went from being a daily walker to being barely able to walk across the room. I was hospitilized for acute kidney failure, and placed on dialysis. I remember that my nurses had to lift my legs for me because they were so swollen and I was so weak. Physical therapy, dialysis, and my desire to recover, helped me to regain my movement, along with reduced edema. I also had many paracentesis procedures to drain the ascites. Like you, the swelling went down after my transplant.
Rodney9999, Did you have any mobility issues prior to your transplant? I'm curious, Are you a PSCer?
Replies to "@rodney9999, I received my simultaneous liver and kidney transplant for PSC in 2009. I don't remember..."
I did have mobility issues big time. I showed no symptoms until my early 40s when during a routine lab draw my labs were all over the place. My diagnosis was attributed to 100% alcohol. I did drink in my 20s and 30s however it seems real fishy to me this was the only reason given what I consumed. I did have an MRI that recommended Ercp however it was never conducted due to risk factors given my higher INR. I also never had a liver biopsy done.
Also I was tested for celiacs and was positive for both gene pairs however I have not had a small intestine biopsy yet due to my recent transplant.
I’m just very fortunate to have been transplanted and have been doing well 2 months post op.
So to answer your question, I’m not sure I guess 🙂
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@rosemarya Your post actually brought tears to my eyes, it made me remember just how miserable I was. About a month or so before my transplant I had an appointment with my hepatologist. I was so miserable when we got in the door of the hospital my husband asked me if I wanted a wheelchair. I said no, and regretted it. My feet were very swollen but I was still able to get some sandals on, with my feet bulging out of them.
The hepatologist looked at my feet and told me that things would get better. I was on two diuretics but they really did not help a lot, or maybe they did and I would have been much worse without them. I cannot imagine being any worse than it eventually got though. That last month or so before transplant really was miserable.
The swelling went down gradually after transplant. I am so grateful to be here today and to be well and feeling strong.
JK