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← Return to MDS starting Inqovi
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Blood Cancers & Disorders | Last Active: 5 days ago | Replies (6)
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@255 yes, I took Inqouvi after 16 mos of Revlamid which was not working anymore. I also took Levofloxacin for a while without side effects. Since you have high risk MDS and you are not getting any younger, I am surprised your Dr has not already put you on the transplant path? How long did your Hem/Onc give you before AML sets in?
Replies to "@255 yes, I took Inqouvi after 16 mos of Revlamid which was not working anymore. I..."
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@janetlen
Good question. When I broached the timeline, they said that my results indicate a 25% chance that the MDS will progress to AML, and that if I do nothing I'm looking at a 14 +/- month survivability. . . they also indicated that before a transplant can be done, the blood values need to improve and at that time do another bone marrow biopsy (after 2 rounds of therapy) to see if the blast percentage has improved to below the 10% threshold, I'm currently at 12%. I'm scheduled to meet with the transplant specialist soon to determine if I'm a candidate. Since I'm new to this, and as you are probably aware, the information and proceedures are a little overwhelming at first, and right now I'm doing my best to understand the implications and too mentally and physically prepare for the changes. I believe in listening to what one's body tells it what works and what doesn't.
Thanks
As for the Levofloxacin, it's considered a "black box" drug, and that is somewhat concerning.