Connect
← Return to Transplant patients - anyone get anemia or Parvo Virus?
Discussion
Transplant patients - anyone get anemia or Parvo Virus?
Transplants | Last Active: 13 hours ago | Replies (81)Comment receiving replies
Hi @caretakermom ☺️
My home nephrologist requested the test due to my high risk profile.
At this point, hubby is not at high risk for rejection. Let's see what the doctors decide is the best customized med plan.
They may decide that they don't want to use Everolimus even at a low dose.
He may end up with a new medication that gives them (and you) confidence that there is low risk for rejection.
Let's wait and see in the next couple of weeks what is decided. Hopefully, Allosure testing will be unnecessary and all will be well.
Replies to "Hi @caretakermom ☺️ My home nephrologist requested the test due to my high risk profile. At..."
I will advocate for him to stay on Everolimus because it has worked well up until now - if we can manage the anemia with a trough level adjustment that the txplant center agrees to. At this point I don't want to dally with a brand new medication because that could also lead to other undesirable side effects. At the top of my priority list is also to get rid of prednisone. I'm concerned they could say he can be on a lower Everolimus dose but be on prednisone for life!
Connect
@hello1234
Anyone else can also chime in for this.
For your txplant meds, do you take it with/without food and do you take them consistently the same way - i.e, take it with/without food in the am and pm.
Asking because I started noticing the trend in Everolimus trough level dropping, when hubbing went back to work in office, and eating dinner hours later after taking his evening dose of transplant meds. Food absorbs the medicine better and so I'm thinking if he's eating later at night (10pm -12pm) his trough level may not be accurate when he goes in for blood test at 7:40 am??
Breakfast is always the same time when he takes his am dose. I'm wondering if the the inconsistency of the pm dose - as regards to food, has anything to his hitting trough level.
I have always heard to be consistent in taking your txplant medications in regards to time(every 8 hours) but have not that it can make a difference if not consistent in taking with/without food. Am I clear in what I'm asking? Thoughts anyone?