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Primary Sclerosing Cholangitis (PSC)
Transplants | Last Active: Mar 23, 2020 | Replies (89)Comment receiving replies
@sandyjr, Has she considered talking to a lawyer? I saw where another member has suggested this.
I hate to hear that on top of her health problem she is living in a threatening environment. She is going to need support both emotionally and physically if her health begin to fail.
Is her medical team aware of her home and financial situation? Has she spoken to a social worker?
Replies to "@sandyjr, Has she considered talking to a lawyer? I saw where another member has suggested this...."
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This is fairly new, so she has not had time to do much but go for tests and Dr’s appointments. She has an attorney, but has not been able to get in touch with him. He can guide her about who to see for disability and maybe give her some additional advice. She has no health team yet. She just has her GP who noticed the stuff with the liver enzymes and the gastroenterologist that she ended up with in the ER. She had seen her former gastroenterologist who was taking his time getting tests for her. The new Dr has gotten her a number of tests to diagnose the PSC and he is also treating her for her Crohn’s. I am liking how well he treats her and is working for/with her. We are new to this, so just finding our way. Getting away from the husband is a problem as he carries the health insurance and has told her if she leaves he will just quit his job....he really loves her, right? She does pretty well standing up for herself, but she sure does not need the stress and confusion. I have been single for 27 years and truly like my life and I think she would too, if she ever gets the opportunity.