@wildtwinsfan Hello, I believe this is your first posting on Connect - welcome! Please be aware that we are here to learn about the experiences of others, as you shared yours, and we do not offer medical advice. With HCM, we are all so different and therefore, medical protocols are all so different as well. It is most important to receive care at a COE (Center of Excellence), or as in my case because I live at least 4 hours away from one, from a doctor who has been trained at a COE.

Please learn all that you can about HCM, Camzyos and surgery on your own so that you can know better what your doctor says, ask questions you may not have thought to ask and arrive at an educated decision with your doctor for future treatment. I have found that people taking Camzyos have one of three results: it does absolutely nothing for them, it's a miracle drug or it works for a while and then does not work.

Here are links to help you get started in becoming well informed about HCM: https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198 and https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/diagnosis-treatment/drc-20350204 and https://www.mayoclinic.org/drugs-supplements/mavacamten-oral-route/description/drg-20534017

May I also suggest looking at the website of the Hypertrophic Cardiomyopathy Association website 4hcm.org and scheduling an intake call (red box on upper left). They are truly experts in helping people navigate their journey in living with HCM.

Why do you not think surgery is the best option for you? What has your doctor suggested? How did you learn that you have this inherited disease?