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Primary Sclerosing Cholangitis (PSC)
Transplants | Last Active: Mar 23, 2020 | Replies (89)Comment receiving replies
@silverwoman, Welcome to Mayo Connect. Congratulations on your perseverance and your commitment to take care of yourself. You have been on quite an amazing journey. I am happy to hear that you are doing well. I will be celebrating 10 years in April, so I invite you to come along and enjoy the post transplant life for many years! I was once told by 3 gentlemen, all transplant recipients who called themselves the Three Amigos, that the 'secret' to long survival is to take your meds and take care of yourself. I think that is good advice for us, don't you? Together these guys had 50+ post transplant years.
Here is something that I always enjoy sharing with new transplantees: Patients Share Their Best Tips and Tricks
https://connect.mayoclinic.org/page/transplant/newsfeed/top-transplant-hacks-patients-share-their-best-tips-and-tricks/
If you have not yet discovered the Transplant Pages - https://connect.mayoclinic.org/pages/
I suggest that you check out the regularly updates Newsfeed posts presented by the transplant staff members. You might even recognize some of them!
How has the adjustment to post transplant life gone for you?
What is the best part of being post transplant for you?
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Thanks for your welcome and the shares, Rosemary. I'd love to join you for many years of post transplant life; it's such an inspiration to know that you and many like you have enjoyed so many, many years. Thank you for the shares; I will check them out. As for adjustment to PT life, not being 100% my old self yet is a bit frustrating.....not quite ready for my old pace yet. I'm trying to avoid crowds in this first six months PT, and being, by nature, very gregarious, this is a challenge. The best part is having the anticipation and concerns about the operation behind me and knowing that my family and friends have been so supportive and caring, a solid foundation of love and prayer. Life is good.