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jacinta (@jacinta)

Primary Sclerosing Cholangitis (PSC)

Transplants | Last Active: Mar 23, 2020 | Replies (89)

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@jenchavez

@rosemarya I am wondering if this is a good platform for me to highlight some important news from PSC Partners. For example, PSC now has its own ICD-10 code. We are working to get the word out. Would that type of information fit on this platform?

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Replies to "@rosemarya I am wondering if this is a good platform for me to highlight some important..."

@jenchavez
You have responded to the Mayo Clinic Connect Group Discussion forum. This is a place where we share our experiences and support each other and fellow patients. Would you tell us a little about your connection with PSC? Are you a PSC patient? .

I am now preparing to honor 10 years of renewed health and life as an organ recipient. I wish I had know of such a group when I was experiencing my own liver failure with PSC. How did you become involved with PSC Partners?

Here is a newsfeed page about PSC Partners – I think that is the best place to post the news.
Q & A: Ricky Safer, CEO of PSC Partners Seeking a Cure
https://connect.mayoclinic.org/page/psc/newsfeed/q-a-ricky-safer-ceo-of-psc-partners-seeking-a-cure/