← Return to Primary Sclerosing Cholangitis (PSC)
DiscussionPrimary Sclerosing Cholangitis (PSC)
Transplants | Last Active: Jun 10 6:35am | Replies (93)Comment receiving replies
Replies to "Thank you for your quick reply. I am in shock even though I think I knew..."
Sandy, when you say that Mayo has "places that work with them and maybe act as intermediaries", I believe you are referring to the Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network
Excerpt from the website
"Mayo Clinic is deeply committed to caring for all those who need hope and healing, but we recognize that not everyone wants or needs to travel to Mayo Clinic for care. Today, innovations in the delivery of care can ensure that people have access to Mayo Clinic medical expertise no matter where they live.
The Mayo Clinic Care Network uses technology and physician collaboration to deliver a full spectrum of medical expertise to communities across the country and throughout the world. Through the network, Mayo Clinic collaborates with local providers, complementing local expertise and providing additional peace of mind."
It doesn't look like there is an official Care Network partner in NJ. But as Rosemary says, many patients of Mayo Clinic return home and Mayo experts coordinate care with local providers. If you call Mayo, they can answer these questions more knowledgeably, including information about out of state insurance etc.
Sandy. I was treated locally in my state of Kentucky. And I received excellent care here, and after 8 years, I had to be listed for for a transplant here. When some some complications developed, my local transplant team arranged for me to be seen at Mayo, where I transplanted in 2009.
It sounds to me like your daughter has a supportive doctor who will answer her questions about this.
How does that sound to you?
@stella25, with your PSC experience, do you have any ideas to help Sandy deal with her daughter's new PSC diagnosis?